Cauda Equina Champions Charity

Storm Keating  – Charity Ambassador

We are extremely proud to announce Storm Keating has joined Champions Charity as our second celebrity Ambassador.

Storm, is an Australian fashion designer, married to husband Ronan as well as mum to two young children. Storm recently underwent spinal surgery for a prolapsed disc that had escalated into cauda equina syndrome, which is a medical emergency.

Storm brings first-hand experience of the condition to her charity role and having her support moving forward will help our charity raise awareness and reach more people isolated in the community.

Storm commented “I had never heard of Cauda Equina Syndrome (CES) before my recent experience and now it’s something I will never forget. I want to raise as much awareness as possible by supporting the Cauda Equina Champions Charity to help other people to know what to look out for. Many of us take our health and our spines for granted, but sometimes the unexpected can throw you a curve ball. I really want to try and raise awareness to ensure that everyone is lucky enough to come out of a CES diagnosis in a good place”.

Cauda Equina Syndrome can affect anybody and everybody suffering with acute low back pain should be aware of the red flags.

We would like to thank Storm for the generous gift of her support and wish her the best recovery.

We are looking to appoint two Patient Trustees on our Board!

We are pleased to announce that two spots on our Board of trustees are now available.

  • All applicants must have Cauda Equina Syndrome, and have lived with the condition for a minimum of 3 years.
  • Trustee term for 12 months only.
    (We offer an equal opportunity every 12 months for a new trustee to come on board)

 

To apply for the role, please send us an email covering the following bullet points.

  • Write a short introduction about yourself.
  • Why do you want to be a trustee?
  • How has CES impacted your life?
  • When were you diagnosed with CES?
  • Would you feel comfortable in speaking out when a conflict or tense situation arises? And how would you deal with this.
  • What attributes can you bring to the team?
  • Do you have any questions for us?

Please send all applications over to james@championscharity.org.uk

Closing date for all applications is 1st September 2021.

Once all applications have been reviewed, you will be invited to attend a Zoom meeting.

We have two face to face support group meetings taking place on the 20th Aug 21.

Middlesbrough

Please register your interest for MIDDLESBROUGH hosted by Peer Support Champion Claire Rawlings using the link below.

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https://www.eventbrite.co.uk/e/166149606947

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Nottingham

Please register your interest for NOTTINGHAM hosted by Peer Support Champion Debbie Smith using the link below.

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https://www.eventbrite.co.uk/e/166146708277

Cauda Equina Champions Support Group Meeting South – Crawley

Wed, 28 July 2021: 13:00 – 15:30

Rapidcare, Koppa House, Napier Way, Crawley, RH10 9RA

Come and join us for our first face to face support group meeting since lockdown. We are meeting at our charity partners – Rapidcare, new head offices and will be talking all things CES as well as filming for our new charity video.

Come along and enjoy meeting new friends and a spot of lunch too!

 

One Million Steps for CES – Fundraiser

 

Claude represents anybody living with Cauda Equina Syndrome (CES).

Cauda Equina Red Flags

Claude could be a man or woman, young or old, living anywhere in the world.

Through personal experience, Claude understands the importance of raising awareness of the correct diagnosis and early treatment of CES. Claude has experienced the devastation and isolation and caused by this neurological condition and recognises the importance of being connected and supported by people who’ve been through the same life-changing experience.

Claude’s personal story is a typical one.

Claude tells of delayed diagnosis and treatment, lack of support and of the struggle with acceptance of a life changing condition.

The Cauda Equina Syndrome Association (CESA) is here for people like Claude and their families. To find out more about CES please visit CES Made Simple page.

We aim to embrace people living with CES and by using our collective voice, we hope we will bring about change and an end to unnecessary suffering. The UK has the highest incidence of CES. With the help of our members, we hope to change this and empower and support people to continue to live positive, happy lives.

Read about Catrina’s first support group that she attended.

 

For Healthcare Professionals

As a healthcare professional we hope you can help us spread the word, raise awareness and reach patients. We hope you will use our site and services as a valuable resource in your day to day work and that by working together we can really make a difference.

 

CES Explanation

More about the symptoms can be found on our Red Flags section.

To contact the Cauda Equina Syndrome Association  email us or phone our helpline 03335 777 113

 

 

Cauda Equina Volunteers

 

We wouldn’t exist without the help of our volunteers. We are very grateful but always looking for more help ! If you live with CES either as a patient or family member and would like to dedicate some of your time to spread awareness and reach patients, we would love to hear from you! We have lots of different roles and need people with all sorts  of experience, as well as those just willing to get stuck in. Please complete our volunteer form.

 

 

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