#caudaequinachampions Tag

Despite the reassuring increase in awareness for Cauda Equina Syndrome over recent years, awareness of the Red flags changes little for patients living with this condition. There are still huge issues with non-existent or inadequate care pathways within the NHS. Improved education about the chronic, post-operative issues...

This is Louise she is our latest Cauda Equina Syndrome Champion. She is sharing her story of raising her son and becoming pregnant after Cauda Equina compression. Louise has unfortunately had Cauda Equina compression twice but despite that she does everything she can to be a...

The past few weeks I have been trialling a new product. It's called Renew Inserts. Basically the premise of the product is to give you a solution to anal leakage. It is hoped that the insert will give peace of mind to the user and...

Hey Everyone, So I know I’m not the only person with back pain who struggles to sleep at night, because I have spoken to so many people who have experienced the same issue. In fact according to the US National Sleep Foundation, it's not just people...

The BBQ at the Watermill Park, Broughton Hall began at 1pm. We had prepared the pond area by the side of our office with red flag bunting, red balloons, streamers and hay bales. Our mascot Claude was there on our CESA poster as a reminder...

Hello everyone, my name is Margaret. I don't have Cauda Equina Syndrome but my daughter does. I think my story will resonate with all of you who are carers, but I feel that everyone will recognise what I have to say that, basically, we are all...

Dear Clive, I want to offer, alongside all our support group members, a huge Thank you ! to you Clive,  Naresh and Julius. Everybody felt your reporting and the presentation of the information was absolutely fantastic. You managed to condense vital, quality information into a tiny moment...

Why is our work so important?   I set up our non-profit following my own cauda equina injury in 2010, which had resulted in permanent disabilities following delays in my treatment. It was my aim to develop a resource of information and a network of support for patients...

I spend my life struggling to know what to say to people when they ask how I’m doing. I usually say I’m fine because I don’t want to bring the conversation down. But, a lot of the time I’m not fine and I think it’s...

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