Victoria Main

Victoria is our Head of Support Services as well as working as a Nurse Assessor in the NHS. She is a cauda equina patient too and so has insight as a healthcare professional and as a patient. Vicky’s passion is contagious and she keeps us going through the ups and downs  – we are very grateful to have her on board.

“I suppose you could say I was living life in the fast lane, focussing on my career, living a busy life with the family, keeping active when out of the blue in May 2019 I was diagnosed with Cauda Equina Syndrome (CES) and my life changed forever. I remember the first few days after surgery feeling like I was the only person in the world living with CES, I had so many questions and didn’t know where to turn for the answers. As I began to realise I may never regain the feeling in my leg, be pain free or regain my bladder and bowel function I began to feel like my life was over.

A nurse at the spinal unit signposted me to the charity and for the first time I didn’t feel alone. There were other people with similar experiences and support not only for me but for my family too.

I quickly knew that I wanted to raise awareness of CES and support those living with it, I wanted to put a stop to people feeling alone and lost. Becoming part of the Cauda Equina Champions Charity family allows me to give something back, it enables me to help and support others and work towards change” – Vicky 

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