CESA was founded by Claire following her own CES injury. A huge herniated disc in her lower back compressed the nerves at the base of her spinal cord, leading to permanent, life changing injuries.
Her traumatic experience of emergency treatment, followed by a lack of support and services, highlighted the need for a patient support group.
She heads up the Association and is supported by staff and volunteers whose lives have all been touched by CES.
Living in Lancashire with her family, she raises awareness and reaches out to people isolated and unsupported in the community. She passionately networks and champions cauda equina syndrome, using her skills to deliver real improvements and services for people living with the condition.