Here’s a list of things we came up with that help you to cope with Cauda Equina Syndrome.
Cauda Equina Syndrome Association – Helpline 03335777113 – FREE
Cauda Equina Syndrome Association Support Groups – FREE
Blue Badge – A blue badge assists you when parking. It allows you to use disabled parking bays if you fit the criteria for application – FREE
Priority Services Register – Contact your water and energy supplier to say you have a disability. They can put you on a priority list if there is ever a shortage of water or power cut – FREE
WaterSure The WaterSure scheme is available for certain customers with a water meter. It allows them to have their bills capped. This is to make sure that these customers don’t cut back on how much water they use because they are worried about how they will pay their bill. To be eligible you need to be in receipt of one of the following benefits Income-based ESA, Housing Benefit, Income-based Jobseekers Allowance, Child Tax Credits, Universal Credit, Pension Credit. You must also have (or someone living in the property must have) a medical condition which requires significant additional use of water. Examples of medical conditions include weeping skin diseases (such as psoriasis), Crohn’s disease or ulcerative colitis, etc. Additionally if you are responsible for three or more children under the age of 19 and in full-time education living in the property you are also eligible.
Social Worker Assessment – Social workers can provide help in all sorts of areas, particularly with housing and care plans – FREE
Housing review from an occupational therapist – See whether something as simple as a rail in the bathroom could help you in your daily life. You can ask your physio or social worker for an OT assessment. – FREE
Access to Work – A Job Centre Plus run scheme that assists you in getting back to work. You may be eligible for a paid support worker to help you, or assistance with travel costs. Maybe you need adjustments to your work environment to make it accessible to you – FREE
Carer Holiday Grant Scheme – You may have a scheme in your area. It enables a carer to have a break from looking after someone while their loved one receives respite care – FREE
National Trust Access for Everyone Card – Gets a carer in free to all National Trust venues – FREE
CEA card – Gets a free carer into certain cinemas with you – £6
Many events and attractions offer free carer tickets. You may need to provide evidence of your disability for this – FREE
Disabled Train Pass – Get up to a 1/3 off rail travel – £20 for one year, £54 for three years.
If you do not have a Railcard and you are blind or partially sighted and travelling with a companion, or if you use a wheelchair, you can get a discount on Anytime tickets.
Radar Key for use of accessible toilets. – FREE from Fittleworths/ Incontinence team etc or buy £4.75 online
Just Can’t Wait card – commissioned by the Bladder & Bowel Community. A visual aid that explains you have a medical condition and you need to use the toilet fast. It also helps if you need to use an accessible toilet, showing it to an employee will encourage them to give you the radar key quickly if you do not already have one – FREE
Motability Scheme – If you receive the higher rate of Disability Living Allowance or enhanced rate of PIP you are eligible to use the mobility portion of your money for a vehicle from the Motability Scheme. Motability also offer grants for things like learning to drive or adaptations to those who have been means tested and have a qualifying low income – FREE
Freedom Pass – Allows those living in London free journeys across London and buses nationally. There is also a scheme called Taxicard Scheme for those who find it too hard to travel without assistance and for those with ‘serious mobility problems’. – FREE
Disabled Person’s Bus Pass – some areas issue a disabled person’s bus scheme. In our area it’s a concessionary fares scheme and it offers free off peak bus travel throughout England. Go to www.gov.uk/apply-for-disabled-bus-pass and type in your postcode to find out more – FREE
Access Card – A card that translates your disability/impairment into symbols which highlight the barriers you face. It is informative, evidence of a disability, offers discounts at certain locations and offers opportunities for disabled people – £15 for three years.
National Disabled Identification Card – evidence of disability so there’s no need to take paperwork to attractions for a free carer ticket and discounts in some places – £11 One year or £14 two years
(These disability identification cards can be very helpful, especially for those with an ‘invisible illness’. The card has a photo id on it and can be useful in environments where you wish to access disabled facilities but people are reluctant to let you because visually it isn’t apparent you need it.)
William Merritt Centre or similar Disabled Living Facility in your area, offers free advice & assessments for vehicle adaptations, wheelchair assessments and general living adaptations. – FREE
Citizens Advice – They provide help on a myriad of matters and are particularly helpful with benefit entitlement – FREE
GP Gym Referral – free access to a gym for a certain period of time. Talk to your GP and physio to see if this is suitable for you – FREE
Library Card – Why not borrow books on pain management or other self help categories or even fiction to help as a distraction from the pain? Libraries also have computers to use if you do not have one – FREE
Incontinence Team – A team that helps you with your incontinence issues. They can also provide you with incontinence supplies like pads for free. Ask your GP to be referred – FREE
Pain Management Course – If you need help with pain management and want to learn more about the science behind pain, we recommend that you try a pain management course. They can be very helpful in some cases. Ask your GP if you are eligible to be referred – FREE
Back Up – A charity that offers help for those permanently in a wheelchair or who are occasional wheelchair users. They have a mentoring programme, skills workshops and wheelchair independence focused holidays. Some of the services are free and for some they suggest a donation.
Further education courses – How about taking a course at your local college? If you are in receipt of ESA you will get to go on the course for free.Follow us on social media: