The purpose of our Support Group is for each member to find just that, support. Not just from us as the
CESA but most importantly from you guys, other people on the group who have either experienced
Cauda Equina Syndrome first hand or have experience as a carer or friend of someone with CES.
It’s really important when commenting on someone else’s post that we are mindful of the person’s feelings.
We never know another person’s pain (both physical and emotional) so someone with seemingly lesser
symptoms than yourself may actually be struggling to cope even more than you.
When someone reaches out in a post sometimes all they are looking for is a virtual hand to hold to get
over those moments when it feels impossible to cope alone. This can be especially hard when those
around you don’t fully understand what you’re going through. This is why we encourage carers and
friends to be a part of the group to learn as much as they can about our condition. We are lucky that we
have the internet so that we are never truly alone.
There is real strength in asking for help and speaking your truth on our pages and in our support
groups. We encourage you to be as open as you want to be and ask you to offer your help to others if you
think you have something to say that might positively impact them. As the CESA we are working to make
the lives of all those suffering better and our support group helps us achieve this and is successful through everyone’s contribution.