Dear Diary

Read Members’ Stories

If you would like to share your story with the CESA community you can send it to us here.


The time I complained to Amazon, and it made me feel like I could take on the world!

A little context… In brief, I have several serious spinal issues. I have always had back problems, but it became life changing when I suffered something called Cauda Equina in 2012. Since then I’ve had neurological damage to differing degrees. My legs can give way at any moment, and occasionally I can’t move them at all. They can shake uncontrollably, […]


On a Sunday in 2001 at the age of 50, I had a fall from a ladder and destroyed L3 vertebra. I was incontinent at the accident scene. I was taken by Ambulance to hospital. In casualty I asked if I was going to be incontinent, and was answered abruptly ‘Yes you are now’. I was fitted with an indwelling […]


I fell out of a window at work in 1996 from the ground floor and for 15 months was left with severe back pain. I was told repeatedly that I had sciatica and was prescribed with stronger pain killers. My husband took me to see a chiropractor in the hope that she could ease my pain, but I think this […]


Hello everyone. I came across this website a few days ago, and I finally decided to join so that I can get in touch with others who also have CES. I’m a 37 year old male, living in NJ and I’ve had CES since May 20th 2013 and I had my emergency surgery on May 21st 2013. Right before my […]


I suffered a serious fall which crushed my L5 vertebrae, both discs above and below and damaged the L4 and S1 vertebrae. Nerve damage is pretty extensive with more or less total loss of all the S roots and partial loss on L4 and L5. I have almost no muscle power below the knee with loss of sensory in both […]


Ok in the beginning I had a normal active life, I played cricket for my home town (not too bad) and worked for the RNLI as lifeboat crew in my first year as a probationer, I knew the risks of being at sea and saving life and took it head on! And so it started like a normal day out […]


My CES story began in 2006 when I started having a strange weakness in my left leg. It was causing me significant pain but only when walking. I thought I’d pulled a muscle or something. So I ignored it for a few weeks. I thought it would settle down if I rested but several weeks later it was still happening. […]

CES Down Under

I was diagnosed with Cauda Equina Syndrome in August 2012, when I had a degenerative bulging disc crush the nerves in my l4 – l5. I was playing touch football with my father at the time when I felt a twinge in my back. Over the next three days going back and forth, I was eventually sent to emergency after […]


My story really begins where you find me today, typing up my Cauda Equina Syndrome journey to put on the site, hoping that it will become a small part in what the CESA manages to achieve in raising awareness of the condition, helping stop the unnecessary suffering of even more people and providing support in every way to those people who […]
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