Welcome to the Cauda Equina Syndrome Association

Welcome to the Cauda Equina Syndrome Association

We are a patient led non-profit organisation, striving to raise awareness of Cauda Equina Syndrome and support people living with the condition. We have a range of leading experts associated with the organisation who bring a wealth of knowledge and experience.

We aim to embrace people living with CES and by using our collective voice, we hope we will bring about change and an end to unnecessary suffering. The UK has the highest incidence of CES.  With the help of our members, we hope to change this and empower and support people to continue to live positive, happy lives.

Membership is free to anyone living with Cauda Equina Syndrome.

Supporting You

We offer a range of support services designed to help members make the most of their lives, including the opportunity to share your stories, ask for guidance, join social media support groups, links to useful products and guides, support group meetings and legal advice.

Healthcare Professionals

As a healthcare professional we hope you can help us spread the word and use our site as a valuable resource in your day to day work and that by working together we can really make a difference. If you would like to discuss how we can work together please contact us.

Raising Awareness

We will work to make CES a household name and that everyone, including health care professionals, are aware of the ‘Red Flag Symptoms’. We strive to aid early diagnosis of the condition and subsequently avoid permanent neurological damage.

Members around the World

We have members around the world and encourage members to join in and use our messaging system to contact people in your area.


Shop & Support

Purchase CESA products for yourself or to support fundraising events to help you raise funds for our work

Members' Stories

Read stories from our members and send us us your story. Sharing experiences can improve somebody else’s life.

Legal Advice

We have sourced the best legal advice for people who believe their Cauda Equina injury results from medical negligence.



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